About The Fighting Irish Martins
This is a motherhood and lifestyle blog written by a first-time mom, and first-time TWIN MOM (!!!). I’m also a marketing agency brand strategist and freelance writer.
I started this blog as a fun way to share stories and feelings about my pregnancy and being a new mom.
When we found out it was twins, I felt so overwhelmed and didn’t know where to turn! There are a lot of great sites out there for info, but for me, I wanted to share stories and tips from our daily life – just one mom to another.
Then things took a turn from light-hearted fun to serious business and my new mission turned into advocacy.
Having My Twins at 27 Weeks
Since being diagnosed and delivering my twins early at 27 weeks due to TTTS (Twin to Twin Transfusion Syndrome), I am dedicated to raising awareness of this condition that affects identical twin pregnancies as well as the conditions my boys have endured as a result of their prematurity caused by TTTS.
Our boys are truly miracles. Axel suffered a Grade 3 and Grade 4 brain bleed, and Jaxon suffered a large bilateral Grade 4 (the highest severity) which resulted in post-hemmoraghic hydrocephalus, with him undergoing 3 brain surgeries in his first 60 days of life. (And 4 in his first 10 months.) They both also have PVL as a result of this brain injury, cerebral palsy (Axel is right hemiplegic and Jaxon quad spastic), and Jaxon is severely visually impaired (CVI).
You can read more about Jaxon’s story here.
You can read more about Axel’s story here.
Both boys also developed ROP eye disease requiring Avastin injections and laser surgery, both are fed by G-tube feeding tubes, Axel has chronic lung disease, and a few other smaller concerns such as feeding difficulties, severe reflux and oral aversion to bottles.
You can read their birth story here.
We were told both boys will have mild to severe levels of disability as they grow up. We choose to believe they are here for a reason and will do great things, whatever their level of abilities turn out to be. We can’t wait to watch them grow into the men they’re meant to be.
After 147 days in the NICU, we finally came home in September 2018!
I hope you’ll enjoy a little peek inside my family life, and how it looks a little different than most, as I know I love reading so many other mom blogs for this reason. 🙂 This blog and my Instagram are not always full of positivity because I try to show the real struggles of parenting two special needs children, without much support. But there are still things about it I don’t talk about, too. It’s difficult, but it’s the life I’ve been given. ❤️
We’ve been lucky to be featured in a few media stories! Check out the links below for a little more about our story.
- Fox News: “Miracle Twins Head Home After Beating Incredible Odds”, October 8, 2018
- CBC News Vancouver Segment, October 12, 2018 – Click here or view. Our story starts at 15:42 on this video, or check it out on YouTube below:
- CBC News Article, “Surrey Twins Beat Incredible Odds, Parents Raise Awareness About Rare Disease”, October 15, 2018.
- Love What Matters Article, February 2, 2019
- 5 Things I’ve Learned as a Parent of Special Needs Children, published by Life. Death. Whatever. in September 2019
I’m Michelle, and I’m a 31 year old first-time mom. I live just outside of Vancouver, BC, Canada with my husband and Doberman (you can follow him on Insta at @perrythedoberman).
We found out we were having identical twins at our 9 week dating ultrasound. What a shocker!
I share stories from our crazy life here as well as daily thoughts on Instagram.
Our twin boys were due July 24, 2018 but were born 3 months early on April 26, 2018 at 27 weeks 2 days due to rapidly advancing Twin to Twin Transfusion Syndrome.
I’m so excited to share pieces of my life here with friends, family and… you! And to inspire other preemie moms and dads that there IS hope, even in the most dire of predicaments. Keep your faith. ❤️