I’ve been thinking about writing this for awhile. This is a peek into our lives and how we feed our twins which looks different than the…
Bringing your baby/babies home from the NICU is a huge day. It’s a cause for celebration! But let’s not kid ourselves that you walk out the…
Axel is finally home!! He spent a total of 147 days in the NICU and is now home with his brother Jaxon, who spent 135 days…
This is a long update about Axel’s current situation. We are so frustrated and it seems like we keep going backwards. Previous to now, he was…
Jaxon is home! My big “little” twin (younger by one minute), the recipient in Twin to Twin Transfusion Syndrome and the larger but sicker twin when…
Motherhood• NICU Mom Life
Post-IVH Hydrocephalus and VP Shunt Surgeries: Jaxon’s Story
September 6, 2018A few days after Axel and Jaxon were born at 27 weeks 2 days, we were told they each had brain bleeds. This is also known…
Being a mom is hard work. You hear that sentence everywhere from everyone, and it’s true. Being a NICU mom, and a twin mom, has added…
For some almost-term (or term) babies, feeding is all they really need to learn in the NICU. These babies are called “feeders and growers” and are…
Being a NICU mom means living in an anxious state of mind all the time. Sometimes without even realizing it. I drive to the hospital with…
I could have titled this post “A Walk to Remember.” Aaahaha see what I did there. Cheeseball alert. But seriously. After over 100 days in the…
Motherhood• NICU Mom Life• Tube Feeding
That Moment When All the Tubes Start to Feel Normal
August 8, 2018I went to the post office today. For the stupidest reason. Because of our hectic hospital schedule, I Amazon Primed a pack of toilet paper. Listen,…
Motherhood• NICU Mom Life• Tube Feeding
CP, ROP, G Tubes and More (Oh My!) – NICU Progress Update
August 3, 2018Today is 100 days in the NICU for the boys and they are now 41w 5d gestational age. Where has the time gone? Soon I’ll have…
Today is your due date. You’ve been here for so long already. 3 months premature almost to the day (April 26). I was so naive back…
For 2 entire months, I didn’t go anywhere except the hospital to visit the boys in the NICU and home… with a stop at a gas…
The past 8 weeks in the NICU with our 27 weeker TTTS survivor twins has both been the longest 2 months of my life and also…