In case you’re new here, both my twins have feeding tubes – G-tubes to be precise. This means they get 99% of their nutrition through tubes…

We’ve been home for the same amount of time the boys spent in the NICU now (5 months), so it’s about time I finally got around…

Jaxon had his fourth shunt surgery two weeks ago. This was an emergency surgery to revise his existing VP shunt, and his second revision so far.…

Recently someone said something to me about the boys’ feeding tubes that I haven’t been able to shake. The comment was, “It must be convenient to…

I knew I wanted to give back to the hospital where my boys fought to live when they were still there. But, WHAT exactly I was…

Today I carted the boys to the hospital for their first nephrology (kidney) appointment. They’ve had ultrasounds and things before but we met our nephrologist today…

I don’t want to see green towels again. That’s just one way the NICU life has changed me. I didn’t realize how much until my (brief)…

I wrote this two weeks ago and then forgot to post it… whooops! But, here’s a glimpse into a day in my life and a bit…

We were lucky enough to not spend Christmas in the NICU (just all summer!), so I don’t have first-hand experience with actual Christmas time in the…

Sometimes I daydream about the mother I would have been if things had gone differently. If I would have had a full-term, healthy pregnancy. Hell, if…

I am SO excited to share this beautiful family photo shoot done by our friend, Rachelle. She is such a talented photographer and I am so…

Being a first time mom in the NICU is scary AF. It’s not how I imagined my entrance into motherhood going, as I’m sure no one…

Every 2 weeks, we meet with a team of therapists and doctors to help the boys with their feeding issues (to one day get off the…

Axel had his G-tube placed on October 29th. It was quite different than Jaxon’s procedure because Jaxon got his while we were still in the NICU…

The boys are 6 months old today! Wow, how time flies. They’re really 3 months corrected age, but 6 months actual today. It feels like it’s…