This week I wrote an Instagram post about being angry, about how advocating for my boys hasn’t gotten anywhere. We still don’t get hands-on physio, rarely…
Physio, OT + Therapies• Recommendations
Ultimate Guide to Our PT / OT Baby Gear (+ Where to Buy)
June 12, 2019If you have a medically complex little one, you know how quickly all the STUFF adds up. Besides regular baby stuff, I’m talking about all the…
A few weeks ago, I was rather proud of myself for getting the boys out early for their big appointment and for doing the whole day…
Last week we had our first NICU reunion tea to attend with the boys! Our hospital holds this lunch every year for current and previous NICU…
Mother’s Day is right around the corner! Last year was technically my first Mother’s Day, but the boys were still in very critical condition and things…
Medical Motherhood• Physio, OT + Therapies
Our 8 Month NICU Follow Up Clinic Appointment
March 30, 2019On March 20, we were at our Children’s Hospital for a day of appointments as part of the NICU follow up clinic. This clinic does just…
It’s 10:48pm on St. Patrick’s Day but I made it! We had these St. Patrick’s Day twin photos taken last week by our amazing friend Rachelle,…
In case you’re new here, both my twins have feeding tubes – G-tubes to be precise. This means they get 99% of their nutrition through tubes…
We’ve been home for the same amount of time the boys spent in the NICU now (5 months), so it’s about time I finally got around…
Jaxon had his fourth shunt surgery two weeks ago. This was an emergency surgery to revise his existing VP shunt, and his second revision so far.…
Physio, OT + Therapies• Tube Feeding
No, My Children’s Feeding Tubes Aren’t Convenient
January 27, 2019Recently someone said something to me about the boys’ feeding tubes that I haven’t been able to shake. The comment was, “It must be convenient to…
I knew I wanted to give back to the hospital where my boys fought to live when they were still there. But, WHAT exactly I was…
Today I carted the boys to the hospital for their first nephrology (kidney) appointment. They’ve had ultrasounds and things before but we met our nephrologist today…
I don’t want to see green towels again. That’s just one way the NICU life has changed me. I didn’t realize how much until my (brief)…
Medical Motherhood• Physio, OT + Therapies• Tube Feeding
A Day in the Life (and A Medical Update)
December 22, 2018I wrote this two weeks ago and then forgot to post it… whooops! But, here’s a glimpse into a day in my life and a bit…