Every 2 weeks, we meet with a team of therapists and doctors to help the boys with their feeding issues (to one day get off the G-tube). The team has an OT (occupational therapist), pediatrician, dietician, physical therapist and psychologist that all work together to continue creating and tweaking a feeding strategy for the boys. We’ve only been for a few appointments so far but I can tell…
Axel had his G-tube placed on October 29th. It was quite different than Jaxon’s procedure because Jaxon got his while we were still in the NICU…
The boys are 6 months old today! Wow, how time flies. They’re really 3 months corrected age, but 6 months actual today. It feels like it’s…
I love this sling! I’ve mentioned a few times in recent posts how when I first discovered I was pregnant, I wanted all-natural everything. From a…
I knew I wanted to raise awareness about TTTS (Twin to Twin Transfusion Syndrome) while I was still pregnant and undergoing monitoring for the condition, which…
I often post about heavy topics on here, like discovering what a brain bleed means for your child, feeding tube woes, cerebral palsy risk, etc. But…
I’ve been thinking about writing this for awhile. This is a peek into our lives and how we feed our twins which looks different than the…
Bringing your baby/babies home from the NICU is a huge day. It’s a cause for celebration! But let’s not kid ourselves that you walk out the…
Axel is finally home!! He spent a total of 147 days in the NICU and is now home with his brother Jaxon, who spent 135 days…
This is a long update about Axel’s current situation. We are so frustrated and it seems like we keep going backwards. Previous to now, he was…
