Recently someone said something to me about the boys’ feeding tubes that I haven’t been able to shake. The comment was, “It must be convenient to feed them when they’re sleeping.” This comment was not meant to be malicious at all, but it stings. And I’m going to explain why. That one sentence sums up 99% of the abnormality I feel on a daily basis. (The other 1%…
I knew I wanted to give back to the hospital where my boys fought to live when they were still there. But, WHAT exactly I was…
Today I carted the boys to the hospital for their first nephrology (kidney) appointment. They’ve had ultrasounds and things before but we met our nephrologist today…
I don’t want to see green towels again. That’s just one way the NICU life has changed me. I didn’t realize how much until my (brief)…
I wrote this two weeks ago and then forgot to post it… whooops! But, here’s a glimpse into a day in my life and a bit…
We were lucky enough to not spend Christmas in the NICU (just all summer!), so I don’t have first-hand experience with actual Christmas time in the…
Sometimes I daydream about the mother I would have been if things had gone differently. If I would have had a full-term, healthy pregnancy. Hell, if…
I am SO excited to share this beautiful family photo shoot done by our friend, Rachelle. She is such a talented photographer and I am so…
Being a first time mom in the NICU is scary AF. It’s not how I imagined my entrance into motherhood going, as I’m sure no one…
Every 2 weeks, we meet with a team of therapists and doctors to help the boys with their feeding issues (to one day get off the…
Axel had his G-tube placed on October 29th. It was quite different than Jaxon’s procedure because Jaxon got his while we were still in the NICU…
The boys are 6 months old today! Wow, how time flies. They’re really 3 months corrected age, but 6 months actual today. It feels like it’s…
I love this sling! I’ve mentioned a few times in recent posts how when I first discovered I was pregnant, I wanted all-natural everything. From a…
I knew I wanted to raise awareness about TTTS (Twin to Twin Transfusion Syndrome) while I was still pregnant and undergoing monitoring for the condition, which…
I often post about heavy topics on here, like discovering what a brain bleed means for your child, feeding tube woes, cerebral palsy risk, etc. But…
