Finding a Christmas or birthday gift for a child with CVI is a tough task! Kids with CVI have trouble processing vision, and depending on their range score, may have little to no functional vision at all. Those who do often need brightly coloured items that aren’t too visually complex (i.e. not too multicolour) to be able to focus on and see them. However, over the past 20…
Last month, the boys got to try out this little power car which is adapted to hold the positioning seats they need to stay upright (different…
Last month, I had the amazing opportunity to do another MEDEK/CME intensive with the boys – close to home! There are no dedicated, 100% CME physios…
This post is sponsored by Kidco, who graciously provided me with 2 PeaPod beds to try out in exchange for my honest review. One of the…
I knew from the beginning of our tubie journey that if the boys were still being tube fed by 12 months old (corrected age), then I…
I exclusively pumped breastmilk for my twin boys for 15.75 months. (Lol ok 16 months we’ll say, it was a few days shy of that.) It…
Caring for a new G-tube site or learning to feed via G-tube at first can seem daunting, but having the right gear makes it a lot…
I haven’t had the heart to write a lot lately. So much is going on, but my brain is too exhausted to then think it out…
I’m writing the following as a peek into my real life and what it’s like to go to appointments every day with the boys’ G-tubes and…
In May 2019, we attended our first MEDEK intensive, also known as CME or Cuevas Medek Exercises. For those parents not “in the know” with special…
A few months ago, I was gifted two Ready Set Rompers to try out for my twins (both have G-tubes in case you’re new here!). Not…
This week I wrote an Instagram post about being angry, about how advocating for my boys hasn’t gotten anywhere. We still don’t get hands-on physio, rarely…
If you have a medically complex little one, you know how quickly all the STUFF adds up. Besides regular baby stuff, I’m talking about all the…
A few weeks ago, I was rather proud of myself for getting the boys out early for their big appointment and for doing the whole day…
Last week we had our first NICU reunion tea to attend with the boys! Our hospital holds this lunch every year for current and previous NICU…
