Do you have a sourdough starter? Are you making a carby creation in your oven right now? If you’re not (like me) then what the hell are you doing with your life?! That’s how I feel, anyway. Don’t get me wrong, baking bread and trying new hobbies is an awesome way to spend the freed up time many of us have. I think it’s great and am genuinely…
Finding a Christmas or birthday gift for a child with CVI is a tough task! Kids with CVI have trouble processing vision, and depending on their…
Last month, the boys got to try out this little power car which is adapted to hold the positioning seats they need to stay upright (different…
Last month, I had the amazing opportunity to do another MEDEK/CME intensive with the boys – close to home! There are no dedicated, 100% CME physios…
This post is sponsored by Kidco, who graciously provided me with 2 PeaPod beds to try out in exchange for my honest review. One of the…
I knew from the beginning of our tubie journey that if the boys were still being tube fed by 12 months old (corrected age), then I…
I exclusively pumped breastmilk for my twin boys for 15.75 months. (Lol ok 16 months we’ll say, it was a few days shy of that.) It…
Caring for a new G-tube site or learning to feed via G-tube at first can seem daunting, but having the right gear makes it a lot…
I haven’t had the heart to write a lot lately. So much is going on, but my brain is too exhausted to then think it out…
I’m writing the following as a peek into my real life and what it’s like to go to appointments every day with the boys’ G-tubes and…
In May 2019, we attended our first MEDEK intensive, also known as CME or Cuevas Medek Exercises. For those parents not “in the know” with special…
A few months ago, I was gifted two Ready Set Rompers to try out for my twins (both have G-tubes in case you’re new here!). Not…
This week I wrote an Instagram post about being angry, about how advocating for my boys hasn’t gotten anywhere. We still don’t get hands-on physio, rarely…
If you have a medically complex little one, you know how quickly all the STUFF adds up. Besides regular baby stuff, I’m talking about all the…
A few weeks ago, I was rather proud of myself for getting the boys out early for their big appointment and for doing the whole day…