I knew I wanted to raise awareness about TTTS (Twin to Twin Transfusion Syndrome) while I was still pregnant and undergoing monitoring for the condition, which only affects identical twin pregnancies (mono-di or mono-mono). I felt the same about post-IVH hydrocephalus once the boys were born and it became one of their main health complications, which is for life. We have been lucky enough to have been contacted…
I often post about heavy topics on here, like discovering what a brain bleed means for your child, feeding tube woes, cerebral palsy risk, etc. But…
I’ve been thinking about writing this for awhile. This is a peek into our lives and how we feed our twins which looks different than the…
Bringing your baby/babies home from the NICU is a huge day. It’s a cause for celebration! But let’s not kid ourselves that you walk out the…
Axel is finally home!! He spent a total of 147 days in the NICU and is now home with his brother Jaxon, who spent 135 days…
This is a long update about Axel’s current situation. We are so frustrated and it seems like we keep going backwards. Previous to now, he was…
Jaxon is home! My big “little” twin (younger by one minute), the recipient in Twin to Twin Transfusion Syndrome and the larger but sicker twin when…
A few days after Axel and Jaxon were born at 27 weeks 2 days, we were told they each had brain bleeds. This is also known…
Being a mom is hard work. You hear that sentence everywhere from everyone, and it’s true. Being a NICU mom, and a twin mom, has added…
For some almost-term (or term) babies, feeding is all they really need to learn in the NICU. These babies are called “feeders and growers” and are…
